We are proud to announce that we will be supporting a local Muscular Dystrophy charity called Action 4 Archie. For every item from our fragranced range: candles & diffusers, we will donate £2 to the charity. Action 4 Archie is a charity which is personally close to us, it was setup by a friend who’s son Archie, has a strain of Muscular Dystrophy called Duchenne.
Archie was diagnosed in 2008 with Duchenne muscular dystrophy, it is one of the more common, severe muscle-wasting conditions. It causes muscles to weaken and waste over time, leading to increasing disability. Duchenne muscular dystrophy is caused by genetic mutations on the ‘X’ chromosome. These mutations prevent the body from producing a vital muscle protein, dystrophin, which is needed to build and repair muscle.
The charity was setup by Archie’s parents (Louisa & Gary) who organise numerous charity events, including an annual Golf day with an auction every year raising several thousand pounds. Louisa, has also ran many Marathons and completed the 100k London 2 Brighton Challenge all in aid of The Duchenne Research Breakthrough fund.
The whole family; Louisa, Archie, Gary and Archie’s brother Leyton have been working tirelessly over the last 2 years to get the green light for a drug called Translarna. This is the first drug treatment addressing the cause of Duchenne Muscular Dystrophy, it’s not a cure but will slow down the progression of the condition. It will be relevant for about 10-15 percent of boys with Duchenne muscular dystrophy in the UK. The family are happy to shout about the drug now being available to over 50 boys in the UK after hard campaigning from the family and NICE.
We’re glad that we can do our bit to help Action 4 Archie through donating 10% of profits from our fragrance range. You can find out more about the charity here.
Our range of scented candle, diffusers and room sprays can be purchased here. Candles & Fragrances